Title: Developmental Disabilities and Co- Occurring Mental Health Disorders
1Developmental Disabilities and Co- Occurring
Mental Health Disorders
2Developmental Disabilities
- A diverse group of severe chronic conditions that
are due to mental and/or physical impairments.
People with DD have problems with major life
activities such as language, mobility, learning,
self help and independent living. - Onset prior to age 22
- Lifelong ( Centers for Disease
Control)
3Intellectual DisabilityAAIDD Definition
- Mental retardation (ID) is a disability
characterized by significant limitations both in
intellectual functioning and in adaptive skills
as expressed in conceptual, social and practical
adaptive skills. - Originates prior to age 18
45 Assumptions
- Limitations must be considered within the context
of the community, culture and peer group - Assessment considers cultural and linguistic
diversity - Limitations co-exist with strengths
55 Assumptions
- The purpose of describing limitations is to
create a profile of supports - With appropriate supports, over time, the life
functioning of a person will improve
6The Concept of Support
- The resources and individual strategies necessary
to promote the development, education and
personal well being of a person with mental
retardation.
7Nine key areas of support
Human Development Teaching /Education Home Living
Community Living Employment Health and Safety
Behavior Social Activities Protection and Advocacy
8ID/Mental Retardation APA
- Characterized by significantly subaverage
intellectual functioning that is accompanied by
significant limitations in adaptive functioning
in at least two of the following areas - Communication, self-care, home living, social
interpersonal skills, community resources, self
direction, contd.
9ID/Mental Retardation
- Functional academic skills, work, leisure, health
and safety. - Onset must occur prior to age 18
- Many different etiologies, resulting in
pathological processes that affect the
functioning of the central nervous system
10ID/Mental Retardation
- Subaverage intellectual functioning is defined as
an IQ of 70 or below obtained by an assessment w/
a standardized individually administered
intelligence test (Weschler Intelligence Scales
for Children-R, Woodcock-Johnson, Kaufmann
Assessment Battery for Children)
11Adaptive Functioning
- Refers to how effectively individuals cope with
common life demands, how well they meet the
standards for personal independence for persons
of similar age. - Measures of adaptive functioning include AAMR
Adaptive Behavior Scales, AAID Supports Intensity
Scale
12Degrees of ID/Mental Retardation
- Mild MR IQ of 50-55 to 70 (85)
- Moderate MR 35-40 to 50-55 (10)
- Severe MR 20-25 to 35-40 (3-4)
- Profound MR below 20 or 25 (1-2)
13Etiology of ID/MR
- Heredity (5) include chromosomal aberrations
such as Downs Syndrome and Fragile X, errors of
metabolism as in Tay-Sachs disease, single gene
abnormalities as in tuberous sclerosis. - Alterations of embryonic development (40)
prenatal damage due to toxins, infections,
maternal alcohol consumtpion
14Etiology of ID/MR
- Pregnancy and perinatal problems (15) fetal
malnutrition, prematurity, infection and trauma. - Medical conditions in infancy and childhood (15)
trauma, infection, etc. - Environmental influences (25) , toxic substances
deprivation, abuse
15ID/Mental Retardation
- Prevalence Approximately 1 of the population
(dependent on measures used) - Course Before 18 years
- Familial Pattern No familial pattern
16Communication
- Tendency to say what others want to hear
- Cloak of competence- devise fictions that make
them appear more skilled than they are - If given choices- tendency to favor the
first/last choice - Problems with comprehension- frustration
17Thinking, Feeling Behaving
- Thinking concrete- problems with abstraction,
immature reasoning (rule orientation), problems
with perspective taking - Feeling emotional over-responding, quick to
anger, problems with personal boundaries - Behaving tendency to act out feelings, inability
to anticipate the consequences of actions
18Down Syndrome
- One of the most common genetic disorders
- Affects 1 in 800 children
- Characteristics result from extra copy of
chromosome 21 ( 3 copies instead of 2- trisomy
21) - Diagnosis can be made prenatally by amniocentesis
19Diagnostic Features
- 90 have IQs in the range of mental retardation
or borderline functioning (10 w/in normal range) - Problems with articualtion
- Congenital heart defects
20Behavioral Effects
- Increased risk for dementia/Alzheimers
- Association with Autism being explored
- Some increased risk for major depressive disorder
has been noted - Tendency to act out feelings, emotional
over-responding
21Fragile X Syndrome
- Common genetic cause of IDD
- Affects 1 in 4,000 people
- Affects cognitive abilities, social interactions,
behavior and physical health - Wide spectrum of symptoms
22Typical Facial Features
- Long face
- Prominent chin
- Large, prominent ears
- Prominent forehead
- Small eyes
- Epicanthic folds
- High arched palate
23Behavioral Effects
- Distractibility- short attention span
- Hyperactivity
- Hypersensitivity to sensory stimuli can lead to
sensory overload and tantrums - Social anxiety
- Other behaviors avoidance of eye contact, hand
flapping/biting, perseveration
24Diagnosis
- Genetic testing on a blood sample at any age
- Amneocentesis in early pregnancy
- Clinic checklists for screening
25Cerebral Palsy
- A neuro-motor impairment
- A non-progressive disease resulting in motor
difficulties associated with communication and
mobility problems
26Cerebral Palsy Spastic Type
- Rigid muscle tone
- Stiff jerky movements
- Difficulty shifting position, letting go of
something they are holding - About half of people w/ CP have this type
27Ataxic Cerebral Palsy
- Low muscle tone
- Poor coordination
- Tremors
- Poor balance
- Require more time to complete tasks
28Athetoid Cerebral Palsy
- Muscle tone is mixed
- Difficulty maintaining position for sitting
standing, walking - Random involuntary movements
- Difficulty grasping and maintaining grasp
29Quadriplegia
- Involves all four limbs
- Difficulty moving all parts of the body
- Difficulty speaking and eating
- Require assistance w/ ADLs and positioning
- Communication and eating difficulties
30Hemiplegia/Diplegia
- Hemiplegia affects one side of the body,
difficulty w/ movement, environmental
modifications needed. - Diplegia lower limbs are affected, usually have
god ability to hold themselves upright and use of
arms and hands
31Causes of Cerebral Palsy
- Injury to the brain, before, during or soon after
birth - In-utero typically caused by infection or injury
to mother, high blood pressure, diabetes. - Birth lack of oxygen, injury to brain
- Infancy Prematurity, infection, injury to the
brain
32Associated Features
- Learning problems in one fourth to one half of
persons - Seizures occur in about one half of persons with
cerebral palsy
33Behavioral Concerns
- Difficulty with articulation, being understood by
others - Frustration due to mobility impairment, fine and
gross motor coordination - Physical pain due to positioning, muscle
contractions - Difficulty with emotional regulation
34Autism Spectrum Disorders
- Includes Autism, Aspergers Syndrome, PDD NOS
- Usually evident in early childhood
- Often associated with some degree of mental
retardation - Severe and pervasive impairments in several areas
of development
35Areas of Impairment in ASDs
- Reciprocal social interaction
- Communication skills
- Stereotypical behavior
- Restricted interests
- Sensory abnormalities
36Autistic Disorder
- Markedly abnormal or impaired development in
social interaction and communication - Restricted repertoire of activities and interests
37Social Interaction
- Impaired non-verbal behaviors eye to eye gaze,
facial expression, posture and gestures - Failure to develop peer relationships
- Poor understanding of social conventions
- Lack of social or emotional reciprocity
38Communication
- Delay or lack of verbal communication skills
- Impairment in ability to sustain conversation
- Presence of repetitive or idiosyncratic language
- Disturbances in comprehension
39Behavior
- Restricted repetitive or stereotyped patterns of
behavior - Inflexible adherence to routines
- Insistence on sameness
- Stereotyped body movements
- Attachments to objects
40Associated features
- 75 function w/in range of ID
- Neurologic symptoms sometimes present (reflexes),
seizure disorder in 25 of cases - Rates are 4-5 times higher in males
- 5 cases per 1000 in pop.
- Increased risk for siblings
41Aspergers Disorder
- Qualitative Impairment in social interaction
- Marked Impairment in use of nonverbal behaviors
- Failure to develop peer relationships
- Lack of interest to share enjoyment, interests or
achievements of others - Lack of social/emotional reciprocity
42Restricted patterns of behavior interests
activities
- Preoccupation with one or more interest
abnormal in intensity or focus - Inflexible adherence to non-functional routines
or rituals - Stereotyped motor mannerisms
- Preoccupation with parts of objects
43Aspergers
- Clinically significant impairment in social,
occupational functioning - No delay in language
- No delay in cognitive or self help skills
44Aspergers
- More common in males
- Increased frequency among family members
- Often occurs with ADHD or OCD
45Aspergers Syndrome/HFA
- A neurological disorder that impacts thinking,
feeling and behavior - Many children and youth display poor auditory
processing and modulation - Under stress, display limited self control
46Generalization
- Difficulty applying information and skills across
settings and people - Child may be able to memorize facts as
unconnected bits of information - Child may memorize rules or procedures, but be
unable to apply them when needed
47Rote Memory
- Because of well developed rote memory, may appear
to understand concepts when they do not - May be able to recite the steps in a procedure
but be unable to perform it - Inability to answer open ended questions
48Theory of Mind Deficits
- Difficulty understanding emotions
- Predicting the behavior or emotions of others
- Understanding the perspective of others
- Inferring the intentions of others
- Understanding how behavior affects others
49Theory of Mind Deficits
- Social conventions turn taking, politeness, self
monitoring - Distinguishing Fantasy vs. Reality
50Problem Solving
- Black and white (concrete) thinking, rule
orientation - Tendency to apply a single problem solving
strategy across situations and regardless of
outcome - Lack of self monitoring and adaptation or
flexibility
51Communication
- Good structural language skills (pronunciation,
syntax) - Poor pragmatic communication
- Repeat phrases, exaggerated inflection, monotone,
discuss single topics, difficulty sustaining
conversation
52Non-Verbal Communication
- Nonverbal communication and related social
context problems - Proxemics distance maintained while speaking to
another - Intense staring or lack of eye contact
- Abnormal body posture
53Non-Verbal Communication
- Lack of expressive facial gestures to signal
interest or approval - Inability to understand the facial gestures of
others
54Visual Processing
- Typically stronger than auditory processing
- Visually presented information is more readily
understood - Visual aides, graphic organizers, study guides
and schedules
55Socialization
- Inability to establish and maintain social
relationships with peers - Lack of understanding of social cues
- Interpret words or phrases concretely
- Language comprehension problems
56Social skills
- Inability to understand and use the rules
governing social behavior - Initiate and/or maintain a conversation
- Saying what comes to mind no censorship
- Extensive monologues on restrictive topics
- Rigid adherence to learned rules
57Video Modeling
- Video modeling (VM) typically involves a person
viewing a clip of someone performing the steps of
a task/skill, and then performing that task
themselves. It involves visual and auditory
prompting - Recent research suggests that VM can be used to
successfully teach a variety of skills (academic,
career, social, self care) to individuals with
IDD. (Rehfelt at al, 2003 Mangiapello Taylor,
2003 Nikopolous Keenan, 2003)
58A Promising Practice
- VM appears to improve the pace of learning,
improve task accuracy/quality, improve
generalization, and increase independence (Van
Laarhoven et al, 2009 - Students may prefer VM to traditional forms of
systematic instruction (Hume, Loftin Lantz,
2009) - It does not appear to matter if the student views
him/herself or others modeling the task/skill
59A Pilot Demonstration
- To get some experience with VM and its
application to College students with IDD, we
conducted a pilot demonstration in Fall 2001
semester - We wanted to see how iPAD technology could be
used to help students learn job skills and the
social skills associated with them.
60Our Process
- Task analyze on-campus work experiences
- Demonstrate the tasks for students
- Direct students to perform the tasks
- Provide a hierarchy of prompts until students
complete the task (gestural, verbal, physical w/
verbal direction, modeling w/verbal direction - Take observational data on the types of prompts
needed
61Using video
- Create film clips of the task analysis using
student models - Provide visual and verbal directions within the
video - Have students view the video prior to performing
the task - Remind students that they can view the video as
needed - Take observational data on the number of times
students view the video to independent task
completion
62Ateev
- Sophomore
- Polite, wants to be liked by others
- Does not respond well to social cues, difficulty
with social interactions - He has difficulty initiating interactions/conversa
tions with peers at lunch
63Baseline Data Ateev
Steps Steps Steps Steps Trial Trial Trial
Steps Steps Steps Steps 1 2 3
1 Walk up to the person. Walk up to the person. Walk up to the person. Walk up to the person. 2 0 1
2 Look them in the eyes and say hello. Look them in the eyes and say hello. Look them in the eyes and say hello. Look them in the eyes and say hello. 1 2 2
3 After they respond, ask them how their day is going. After they respond, ask them how their day is going. After they respond, ask them how their day is going. After they respond, ask them how their day is going. 2 2 2
4 Once they answer, them them know how your day is going. Once they answer, them them know how your day is going. Once they answer, them them know how your day is going. Once they answer, them them know how your day is going. 0 0 0
5 Ask that person if they would like to sit with you for lunch. Ask that person if they would like to sit with you for lunch. Ask that person if they would like to sit with you for lunch. Ask that person if they would like to sit with you for lunch. 2 0 2
6 If they say yes, guide them to your seat. If they say yes, guide them to your seat. If they say yes, guide them to your seat. If they say yes, guide them to your seat. 1 2 2
7 Continue conversation by saying, "What classes do you have this afternoon?" Continue conversation by saying, "What classes do you have this afternoon?" Continue conversation by saying, "What classes do you have this afternoon?" Continue conversation by saying, "What classes do you have this afternoon?" 2 x 4
8 Do not repeat any questions you have asked or anything you have said. Do not repeat any questions you have asked or anything you have said. Do not repeat any questions you have asked or anything you have said. Do not repeat any questions you have asked or anything you have said. 0 0 0
9 Do not repeat anything your friend has said. Do not repeat anything your friend has said. Do not repeat anything your friend has said. Do not repeat anything your friend has said. 0 0 0
0 Independent Response 0 Independent Response 2 Verbal Prompt Only 4 Modeling Prompt w/ Verbal Direction
Total 10 6 13
1 Gestural Prompt Only 1 Gestural Prompt Only 3 Physical Prompt w/ Verbal Direction 5 Direct Physical Assistance w/ Verbal Direction
Date 9/30 9/30 10/4
64Video Initiating Conversation
65Post-Data Ateev
Steps Steps Steps Steps Trial Trial Trial Trial Trial Trial
Steps Steps Steps Steps 4 4 5 5 6 6
1 Walk up to the person. Walk up to the person. Walk up to the person. Walk up to the person. 0 0 0 0 0 2
2 Look them in the eyes and say hello. Look them in the eyes and say hello. Look them in the eyes and say hello. Look them in the eyes and say hello. 0 0 0 0 0 0
3 After they respond, ask them how their day is going. After they respond, ask them how their day is going. After they respond, ask them how their day is going. After they respond, ask them how their day is going. 0 0 0 0 0 0
4 Once they answer, them them know how your day is going. Once they answer, them them know how your day is going. Once they answer, them them know how your day is going. Once they answer, them them know how your day is going. 0 0 0 0 0 0
5 Ask that person if they would like to sit with you for lunch. Ask that person if they would like to sit with you for lunch. Ask that person if they would like to sit with you for lunch. Ask that person if they would like to sit with you for lunch. 0 0 0 0 0 0
6 If they say yes, guide them to your seat. If they say yes, guide them to your seat. If they say yes, guide them to your seat. If they say yes, guide them to your seat. 0 0 0 0 0 0
7 Continue converstaion by saying, "What classes do you have this afternoon?" Continue converstaion by saying, "What classes do you have this afternoon?" Continue converstaion by saying, "What classes do you have this afternoon?" Continue converstaion by saying, "What classes do you have this afternoon?" 0 1 0 1 0 0
8 Do not repeat any questions you have asked or anything you have said. Do not repeat any questions you have asked or anything you have said. Do not repeat any questions you have asked or anything you have said. Do not repeat any questions you have asked or anything you have said. 0 0 0 0 0 0
9 Do not repeat anything your friend has said. Do not repeat anything your friend has said. Do not repeat anything your friend has said. Do not repeat anything your friend has said. 0 0 0 0 0 0
0 Independent Response 0 Independent Response 2 Verbal Prompt Only 4 Modeling Prompt w/ Verbal Direction
Total 0 1 0 1 0 2
1 Gestural Prompt Only 1 Gestural Prompt Only 3 Physical Prompt w/ Verbal Direction 5 Direct Physical Assistance w/ Verbal Direction
Date 10/20 10/20 10/21 10/21 10/25 10/25
66Graph Data
67Sensory Issues
- Anecdotal information suggests
- Hypersensitivity to auditory or visual stimuli
- Obsessive preference for certain foods and food
textures - Tactile sensitivity
- In some, high tolerance for pain
68Problem behavior (functions)
- Lack of social skills
- Lack of understanding
- Environmental variables
- Obsessive pursuit of certain interests
- Defensive panic reaction
69Epilepsy
- A brain disorder in which normal patterns of
neuronal activity becomes disturbed , causing
strange sensations, emotions and behavior. - Sometimes causes convulsions, muscle spasms, and
loss of consciousness - Co-occurs with IDD about 25 of the time
70Epilepsy Causes
- Brain injury (trauma) e.g. during birth process
(lack of oxygen) or later by fall, car or bike
accident - An infection or illness during pregnancy
- Meningitis, encephalitis or other infection that
affects the brain - Brain tumors or strokes
- Poisoning (lead or alcohol)
71Absence or petit-mal
- Brief lapses in consciousness
- May appear to be daydreaming or not paying
attention - Child may lose important information during
seizure, is not attending to environment or
people around him/her
72Simple- partial
- Environment may seem distorted or strange
- Inexplicable, disturbing feelings
- Children may display bizarre behavior patterns
73Complex Partial Seizures (focal)
- Start in one part of the brain and may move to
other parts or remain localized - Person may lose consciousness
- Observable twitching of facial muscles, fingers,
hand, arm, leg or foot - Speech may become slurred, unclear or unusual
- Vision may be affected
74Generalized (tonic/clonic)
- Electrical disturbances occur across the brain at
one time - Child may appear to be daydreaming, stare off
into space, or pass out - Muscles may stiffen, followed by convulsions
- Generally followed by confusion, fatigue
- Sometimes loss of memory for events
75Epilepsy and behavior
- Prior to seizures, increase in irritability and
decrease in impulse control - Headaches and body aches/pain
- Fear and/or anxiety
- Mood
- Repeated seizures can lead to problems with
memory, cognition and ability to plan and reason
76Mental Health in Intellectual Disability
- Assessment of Mental Health Problems in Children
and Youth
77Comorbidity
- Two distinct/separate disabilities within the
same person - 30-42 of children with ID have a co-occurring
mental health diagnosis (Rutter et al, 1976) - Chicago study reported incidence rate of 60 with
39 requiring hospitalization ( Reiss, 1990) - Canadian study suggested 67 (Goldman, 1995)
78Diagnostic problems
- Masking IDD disability inhibits expression of
thoughts and feelings - Overshadowing behavioral manifestations assumed
to be a part of, or caused by IDD -
79Effective Diagnosis
- Adapting assessment procedures use of adapted
instruments (Beck Depression Inventory, Reiss
Screen of Maladaptive Behavior, Behavior
Assessment Scale for Children-BASC) - Use of Functional Behavioral Assessment (Fuller
Sabatino, 1998, Baker Blumberg, 2003) - Use of behaviorally descriptive instruments (AAID
Supports Intensity Scale)
80Depression
- Vulnerability to risk factors including stressful
early experiences, poor social/communication
skills, and learned helplessness - Greater risk for abuse and neglect
- Lower levels of social support
- Generally negative social conditions
- (Glenn et al
, 2003)
81Depression
- Increased tendency for children with ID to engage
in externalizing behaviors (aggression, tantrums)
when distressed or irritable ( Reiss, 1992,
Charlot et al, 1993, Johnson,2010) - Limited behavioral repertoire
- Central nervous system deficits may impair
pathways responsible for inhibitory responses and
problem solving
82Depression
- Externalizing behaviors may mask typical
clinical signs of depression - Changes in appetite, sleep patterns, activity
levels, lack of pleasure during typically
preferred activities - Cognitive symptoms feelings of hopelessness,
negative statements about self, others
83Common Behaviors
- Somatic complaints, tantrums, run away, school
refusal - Depressed appearance
- Anxiety
- Social withdrawal (Johnson et al, 1995)
84Bi-Polar disorder
- Depression alternating with mania
- Sleep problems and over-activity that co-occur
over a period of weeks - High rates of aggression or self injury
- Irritability
- Increased vocalization, gestures
85Bi-Polar Disorder
- Rapid cycling associated with central nervous
system dysfunction - Non-verbal children may alternate from complete
silence during depressive episodes to continual
vocalization (Parry et al, 1999) - Changes of ability level (basic skills), moving
from one activity to another (without completion)
(Friedlander Capone, 1999)
86Anxiety
- All DSM-IV-4 criteria for Anxiety Disorder are
applicable for children w/ ID - Problems with cognitive functioning and
communication make application more difficult - Incorporating behavioral equivalents makes
diagnosis possble
87Anxiety General Symptoms
- Cognitive apprehension, tension, fear- panic
- Somatic dry mouth, difficulty swallowing,
flushing, pallor, palpitations, tremor,
hyper-ventilation, chest pain, headache,
backache, urinary frequency - Behavioral avoidance, heightened startle
response, diminished concentration, insomnia - (nightmares) (DMID,
2007)
88Anxiety in Children with ID
- Symptoms are similar as in children without ID
- Increased brooding, sleep disorders, somatic
complaints (Masi et al , 2000) - Increased fearfulness, particularly among females
( Gallone, 1996)
89PTSD in Children with ID
- Symptom experience is likely to be much like that
of non-disabled children - Ability to understand and express may be limited
- Caregiver report may be necessary for children
with more severe disability
90Assessment
- Trauma may be recent or remote
- Trauma may not seem objectively to be severe, but
may have been experienced as severe by the child - Individuals with Mild ID may be able to describe
the re-experiencing component - Individuals with more severe impairments may act
them out
91Symptoms
- Non-compliance may represent persistent
avoidance of stimuli reminiscent of the trauma - Re-experience may be acted out on others, or be
expressed in self injury (skin-picking, head
banging)
92Schizophrenia
- In the general population clinicians look for
characteristic symptoms including delusions,
hallucinations, disorganized speech, disorganized
or catatonic behavior, negative symptoms (flat
affect, loss of energy/interest) - In children, failure to achieve expected level of
interpersonal relationships, academic achievement
93Schizophrenia
- In children and youth with IDD diagnosis is
difficult - If child is highly verbal, delusions may be
expressed, or inferred from fearful behavior if
this is a change from typical functioning - Auditory hallucinations are the most common
symptom (command or critical) - Understanding or typical functioning is essential
to identification of positive symptoms
94Schizophrenia
- Negative symptoms Regression from typical
functioning, withdrawal, loss of interest, energy
and or enjoyment - Bizarre behavior that is atypical, echolalia,
emotional and aggressive outbursts, speaking to
self, bizarre rituals, disorganized thinking
95Environment matters
- Students that are segregated in special schools,
have poorer social skills, more difficulty
establishing social relationships, and display
higher levels of emotional distress and
depression than students in self contained
classes and inclusive settings (McMahon, 1987
Stephanik, 1987 Kennedy et al, 1989)
96Intervention
- Individuals with mild ID benefit from treatments
used with persons of average intellectual
functioning - Family, couples and sibling therapy enable
families to be more supportive - Teaching appropriate behaviors (social/communicati
on skills) paired with consistent reinforcement
is effective - Adaptive technology supports intervention
97Intervention
- Strong support for teaching that focuses on
communication and awareness of feelings (role
play, color codes) - Teaching adaptive coping skills ( how to seek
support, self relaxation, positive thoughts,
etc.) - Teaching independent living, vocational and
recreational skills - Use of peer and adult mentors
98Cognitive Interventions
- Cognitive interventions to reduce emotional
stress by improving self awareness, correcting
faulty thinking, and providing strategies for
emotional coping - Mood charts use numbers, words and images to help
children monitor and manage moods - Technology Touch and learn- a free APP that
prompts children to match mood to facial
expressions
99Cognitive Interventions
- Cognitive restructuring identifies erroneous or
problematic thoughts and modifying them or
replacing them - Help children and youth replace self defeating/
problematic thoughts with statements that
facilitate positive emotional and behavioral
responses
100Affective Interventions
- Help the child to identify and express feelings,
alter or effectively cope with feeling states,
and alter or inhibit problematic responses to
feeling states - Child or youth who is experiencing depression or
anxiety can be exposed to experiences that induce
feelings of positive emotions and well-being - Relaxation techniques, journaling, exercise